Follow-up for Breast Cancer Family Registry Study
New Follow-Up Launched in May 2019
In the Spring of 2018, the National Cancer Institute awarded new funding to maintain and enhance the data and biospecimen resources at each of the six international sites of the Breast Cancer Family Registry.
This funding allows us to conduct active follow-up with all of our participants and update family history and other important risk factor information through questionnaires. By collecting data from the same families and individuals over time, we will be able to examine how certain factors affect breast cancer risk throughout the different stages of life.
In May 2019, we launched a new follow-up questionnaire (available by mail and online) that will collect updates to medical history, lifestyle behaviors, and personal and family cancer history. The follow-up data will be collected over the next 2-3 years.
We will also expand the Family Registry by inviting additional young female family members between the ages of 18 and 39 years who have not yet joined.
Why young women? Risk factors for breast cancer may be different for younger women, yet younger women are often not included in research studies in large enough numbers. We are recruiting young women between the ages of 18 and 39 to become the ‘next generation’ of women who will play a powerful role in speeding up novel research on breast cancer! Learn more about this new 'Young Women's Study' in the brief video.
Most importantly, Breast Cancer Family Registry scientists will continue active collaborations with other scientists world-wide, working on a wide range of studies, including identifying new factors associated with cancer risk and survival, gene discovery, and investigations of novel behavioral interventions and risk communication programs, with the goal of translating research findings into practice and policy. A list of publications can be viewed here.
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Our latest follow-up questionnaire is now available online! If you would like to complete the questionnaire online, please email us at firstname.lastname@example.org and we will send you the secure link to your personalized questionnaire.