SCBE In The News

July 2009:

 St. Paul Pioneer Press, 07/01/09
--Newborns' blood samples raises privacy questions
Hospitals collect a few drops of blood of more than 4 million babies born each year in the United States under programs requiring newborns to be screened for dozens of genetic disorders. The storage and use of the blood is raising questions, including whether states should be required to get parents’ consent before keeping the samples long-term or making them available to scientists. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted in this Washington Post article.
http://www.twincities.com/ci_12730489

--Stanford bioethicist and colleagues call for federal regulation of genetic ancestry testing
The absence of strong federal rules governing the burgeoning field of genetic ancestry testing is creating the potential for serious abuse.
http://med.stanford.edu/news_releases/2009/july/genetic.html

Baltimore Sun, 07/06/09
--Blood feud
Hospitals collect a few drops of blood of more than 4 million babies born each year in the United States under programs requiring newborns to be screened for dozens of genetic disorders. The storage and use of the blood is raising questions, including whether states should be required to get parents’ consent before keeping the samples long-term or making them available to scientists. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted in this article, which originally appeared in the Washington Post.
http://www.baltimoresun.com/health/bal-to.hs.newborn06jul06,0,6067308.story

Monterey County Herald, 07/09/09
--Babies' blood raises questions
Hospitals collect a few drops of blood of more than 4 million babies born each year in the U.S. under programs requiring newborns to be screened for dozens of genetic disorders. The storage and use of the blood is raising ethical questions. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted in this Washington Post article.
http://www.montereyherald.com/science/ci_12792048

 San Jose Mercury News, 07/09/09
--Online gene testers propose their own regulations
This article discusses how gene-testing businesses have drafted new regulations after being criticized by state regulators last year for marketing to California residents without a license to perform clinical laboratory tests. Sandra Soo-Jin Lee, senior research scholar at the Stanford Center for Biomedical Ethics, is quoted.
http://www.mercurynews.com/ci_12801107
http://med.stanford.edu/news_releases/2009/june/networking.html

Bizjournals.com, 07/26/09
--Genetic tests in regulatory 'no-man's land'
Sandra Soo-Jin Lee, a senior research scholar and medical anthropologist at the Stanford Center for Biomedical Ethics, believes there is an increasingly urgent need for a clear set of rules and regulations governing genetic ancestry testing. She discusses those issues in a recent 1:2:1 podcast, which is mentioned in this blog entry.
http://sanfrancisco.bizjournals.com/sanfrancisco/blog/2009/07/genetic_testing_in_no-mans_land.html
http://med.stanford.edu/121/2009/lee.html (podcast)

PoliticsDaily.com, 07/29/09
--Health care rationing and my 91-year-old dad
Mildred Cho, associate director of the Stanford Center for Biomedical Ethics, is quoted in this article on health care rationing.
http://www.politicsdaily.com/2009/07/29/health-care-rationing-and-my-81-year-old-dad/