Information about the ADRC for Patients and Families

Patient Volunteers

WHAT:  The Stanford Alzheimer's Disease Research Center (ADRC) seeks volunteers with Alzheimer’s disease, Parkinson’s disease, Lewy body disease, or Mild Cognitive Impairment to participate in a broad, multidisciplinary research study of memory and aging.  Our goals are to help understand these disorders, to enable earlier detection, and to help develop more effective approaches to prevention and treatment for Alzheimer’s disease and related brain disorders.

WHERE:  Testing is done at Stanford Health Care and Stanford University

COMMITMENT:  Testing will involve 2 to 3 days of participation.  The visits may be spread out over a period of up to 3 months.

ELIGIBILITY:  Adults with Alzheimer’s disease, Parkinson’s disease, Lewy body disease, Mild Cognitive Impairment, or a related disorder.

WHAT TO EXPECT IF YOU VOLUNTEER FOR THIS STUDY:  For most participants, the study includes a neurological examination, memory testing and questionnaires, brain imaging (MRI), genetic testing, the analysis of proteins in the blood (blood test) and spinal fluid (lumbar puncture), and a small skin biopsy.  We might ask you to participate in other studies.  Not everyone needs to volunteer for all these procedures, but research information is especially valuable when our volunteers are able to contribute multiple types of test data.  You will be asked to return each year for follow-up testing and to consider brain donation at the time of death.

Healthy Volunteers

WHAT:  The Stanford Alzheimer's Disease Research Center (ADRC) also seeks healthy volunteers without Alzheimer’s disease, Parkinson’s disease, or other brain disorder to participate in a broad, multidisciplinary research study of memory and aging.  One goal is to help understand and prevent memory loss that comes with aging.  At the same time, studies of healthy older adults help in our research on earlier detection, prevention, and treatment for Alzheimer’s disease and related brain disorders.

WHERE:  Testing is done at Stanford Health Care and Stanford University

COMMITMENT:  Testing will involve 2 to 3 days of participation.  The visits may be spread out over a period of up to 3 months.

ELIGIBILITY:  Healthy adults, ages 70 and up, without memory loss movement problems, or other brain disorders. (Mild memory loss is all right.)

WHAT TO EXPECT IF YOU VOLUNTEER FOR THIS STUDY:  Healthy volunteers undergo the same research assessments as our patient volunteers.  Not everyone needs to volunteer for all research procedures described above, but research information is especially valuable when our participants are able to contribute multiple types of test data.  You will be asked to return each year for follow-up testing and to consider brain donation at the time of death.

Contact for Patient Volunteers and Healthy Volunteers

Christina Wyss-Coray, RN, BSN, PHN
Email: ADRCStanford@stanford.edu
Telephone: (650) 721-2409

Principal Investigators: Victor Henderson MD, MS, & Tony Wyss-Coray, PhD
Department of Neurology and Neurological Sciences, Stanford University School of Medicine

For general information about participant rights, contact 1-866-680-2906.

Caregiver Volunteers

Caregiver’s Longitudinal Aging Support Program (CLASP)

WHAT: The Stanford Alzheimer's Disease Research Center is looking for caregivers of patients with a diagnosis of Alzheimer’s disease, Parkinson’s disease, Lewy body disease, or Mild Cognitive impairment to participate in a study of caregiving.  We seek to understand how caregiving changes over time and what factors are associated with those changes. The study involves an interview about caregiving responsibilities and about the caregiver’s own health, stress, and emotional well-being. Participation will contribute to knowledge of how well-being changes over time, and can help to inform future interventions and scientific research.

WHERE: Interviews are take place at Stanford Health Care and Stanford University.

COMMITMENT: Participation will involve interviews occurring once a year, for up to five years. If the caregiver qualifies, there may be other opportunities to participate in programs and workshops providing education and skills training for caregivers.

Contact for Caregiver Volunteers

Ann Bilbrey, PhD
Email:  abilbrey@stanford.edu
Telephone:  650-498-5903

Principal Investigators:

Victor Henderson, MD, MS
Department of Neurology and Neurological Sciences, Stanford University School of Medicine

Dolores Gallagher Thompson, PhD, ABPP
Department of Psychiatry, Stanford University School of Medicine
Email:  dolorest@stanford.edu

For general information about participant rights, contact 1-866-680-2906.